Tuesday 9 March 2010

West Highland Way Walk in memory of Steph Smith

Steph Thank you so much for taking the time to read this page. My name is Liz Smith and with the help of my work colleague and close friend, Michelle Cuthell, it is our intention to raise awareness of the disease called “Aspergillus” and hopefully raise money into the research of this awful and sometimes fatal disease. We aim to do this by walking “The West Highland Way” from 6th to 10th June, 2010. This is a 96 mile walk starting in Milngavie at Bearsden in Glasgow with the route taking us through Loch Lomond, over Rannoch Moor and finishing in Fort William. Our reason for taking on this challenge is in memory of my daughter Steph who tragically lost her life on 9th April, 2009 due to asthma and aspergillus.

Steph’s ambition, from a little girl, was to become a primary school teacher and she had strived so hard for four years for her B. Ed (Honours) Degree in Primary Teaching at Aberdeen University. A promising career which she was so suited and gifted to. She had been on her final three month placement in her former primary school in Nairn when she became unwell. At first it was thought that her symptoms were purely her asthma, and therefore this was what she was being treated for. However, on Tuesday, 31st. March, 2009, with her breathing causing her much distress, Steph was admitted to Raigmore Hospital in Inverness with a serious asthma attack and within a few days she was diagnosed as suffering from the disease known as ‘aspergillus’. This dreadful disease tragically got a hold of Steph and her immune system was unable to fight it off. The disease had become so aggressive even in that short space of time that it literally invaded her lungs and body, and antibiotics, specifically for this type of fungal infection, were ineffective in treating her.

Aspergillus is an illness, which until it touched our lives in April 2009, was unknown to us. Steph, was a beautiful young woman, in every sense of the word, both inside and out and who at the age of 21 had a tremendous life ahead of her. A vibrant, caring, thoughtful young woman with a zest for life. She was a healthy and active young woman who was an accomplished highland dancer and ballet dancer, being a former member of the Scottish Ballet Junior Associate Scheme and also a member of Ballet West. She was a Young Leader within the Girl Guides working towards her Queens Badge, a former Head Girl of Nairn Academy and as a member of the school’s Samba Band travelled to Latvia and also played clarinet in the Inverness Wind Orchestra. An extremely active young girl where the word “No” was never part of her vocabulary. She had a heart of gold, was so selfless and with her trademark ‘smile’ she was immensely popular among her peers and was everybody’s’ friend. A very mild asthmatic all her life but it was a condition which never hindered her in her activities in her all too short life. Such wonderful times lay ahead for her but tragically, just a couple of months away from graduating, she was struck down with this dreadful disease which cost her her life.

Our lives have changed beyond recognition following Steph’s untimely loss. We truly hope that through our efforts we can spare another person suffering as Steph did, and also save another family from having to go through the pain of losing someone they love to this cruel and distressing illness. A loss which goes beyond measure.

It was a tremendous privilege to be invited to attend a private Graduation Ceremony at Aberdeen University, on 7th July 2009, in Steph's honour,. where we were presented with her degree ~ B. Ed. Aegrotat Primary.

9 comments:

  1. I have a guest house www.elmbank-drymen.co.uk on your first stop, Drymen, of the WHW. Liz, you and anyone with you are more than welcome to stay free. I have ABPA. My parents also stay in Nairn. Its a small world! Best Wishes. Carol.

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  2. What a tragedy to loose such a wonderful girl. My heart goes out to you and your family. I admire you for your determination to raise awarenes and funds through the walk. I wish you every success and hope it will help to soften the awful blow you have been delt.
    My daughter aged 20 has just been diagnosed with ABPA. She has started a physics degree at Lancaster University. She has just climbed Scafell Pike as part of a walking trip in the Lake District. She has had chronic asthma since a baby, but has never let it stop her being an active walker, swimmer and canoeist. The diagnosis has shaken me and her, but she is determined to carry on with the lifestyle she loves.
    Your daughter is a shining example for all to look to. I can only imagine what you are going through and will be thinking of you in June.
    Mary

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  3. Mike in Washington18 May 2010 at 21:20

    Dear Liz: So sorry to read your story about Steph. She was so beautiful and ambitious. I understand the misery as I had aspergillus and was treated with amphotericin B. It was terrible. I will support your walk in June. Blessings from Washington State USA.

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  4. Dear Liz: Im so sorry to read about your tragic loss such a beautiful girl, I too had chronic aspergillus to which i nearly lost my life too, which resulted in lung removal i am a young mother with two very small children to care for my right lung is also damaged but that is from emphysema and tb from the past. I wish you so well for your walk in June and i pray the weather keeps us for you. God bless to you and your family and you know every step you take Steph will be up there so proud of her mother.

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  5. Sorry to hear of your loss.I was diagnosed with ABPA just last week after being admitted yet again to emergency room with breathing difficulties.I am now on long term steroids. I am a young mum and am devasted by the diagnosis. I want to find out more about the disease but there seems to be very little information.I only came across this page while searching for information. I wish you very good luck in raising awareness of this terrible disease. God bless.

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  6. Our beautiful, bright 19-year-old daughter has been diagnosis with invasive aspergillus. It is real and it is deadly. She has lost the ability to speak and read. She is in biodetoxification in Charleston, SC. We need much prayer. Thank you. Mama Cheek

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  7. Mama Cheek
    I pray that your beautiful daughter has pulled through and is making a good recovery. You have been very much in my thoughts an prayers.
    God's Blessing to your daughter and to you.
    Love
    Liz (Steph's mum) X
    Thank you also for reading this page!

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  8. To the Young Mum who e-mailed me on 26th July.
    My apologies for taking so long to reply to your comment. Thank you for taking the time to read Steph's page and I hope you read this message.
    I truly hope that all is going well for you. The Fungal Research Trust whose umbrella 'Aspergillosis' is under are a great site for you to visit. I am continuing, with the help of family and friends, to raise awareness and also funds for research into this dreadful and unknown condition.
    I'll keep you in my prayers. God Bless.
    Liz (Steph's mum) X

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  9. H Mike from Washington

    My sincere apologies for taking so long to reply to your very kind words. Thank you or taking the time to leave your comment which truly was appreciated. Until this affected our lives we had no idea of this condition. Heartbreaking for us that Steph paid the ultimate price of her life but this makes me all the more determined to work as hard as I can to raise awareness and fund raise for this very deserving cause, in memory of our beautiful daughter. If it can benefit one other life then it will be worth it. I truly hope you are doing well and I also hope that you read this comment. Many thanks again for your kind words and encouragement.
    Love Liz (Steph's mum) X

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